One last luau: A family brings hope to people with epilepsy

Seizures suck. There. I said it. My oldest son started having seizures since he was a baby. He was diagnosed with a rare form of childhood epilepsy. No one in our family had epilepsy so we didn’t know what to do or think. We felt alone; isolated.

A few years later, I was asked to emcee Lily’s Luau. I was more than happy to but honestly scared because I didn’t know what to expect. I’ve returned every single year, except one to attend a wedding, to help with the event. I told Anne Giroux, the cofounder of Lily’s Fund that puts on this event, “You’re stuck with me. I am yours for as long as you want me.”

My husband and I found a “tropical island” full of people who “got it” and “got us.” There is an overwhelming feeling of acceptance and unending support at Lily’s Luau. We felt like we were home. It’s not easy to raise a child with special needs AND run a non-profit whose goal is to basically save lives, but the Giroux family has done that with the help of the Penwell family of Verona and countless other volunteers over the past decade.

Madison is fortunate to have this army of do-gooders who know how important it is to always have hope and some coconut shrimp on hand.

I hope you’ll join me and my good friend and colleague, Adam Schrager, for the 10th and last Lily’s Luau this Saturday, Jan. 20, at Union South’s Varsity Hall from 6:30 p.m. to midnight. To learn more about Lily’s Fund, please watch this special Do Something Good story.

One last luau: A family brings hope to people with epilepsy