Celiac Disease Affects Local Family
The Solution Is To Eat Gluten-Free
Posted: 10:18 p.m. CDT May 20, 2004Updated: 10:20 p.m. CDT May 20, 2004
MADISON, Wis. -- Doctors and many families say a very common disease is starting to get some much-needed attention.
Celiac or wheat gluten intolerance is a digestive disorder. Millions have it but don't know it. That's because many people are reluctant to talk about certain health issues. Bowel functions rank near the top.
But the Dederich family, of Madison, is speaking out because they know a diagnosis could change your life. The family often gathers for dinner and table talk revolves around the food. They said they also share recipes but for different reasons than most.
"We have homemade gluten free bread, a mixture of tapioca, potato and rice flour," said Liz Dederich.
The Dederich's all suffer from the same condition called Celiac disease. Because their bodies cannot tolerate wheat gluten, nothing they eat can contain specific cereal grains. Duane Dederich was the first to be diagnosed in 1993.
"I had lost all my body fat and muscle," said Duane Dederich. "I went from 225 pounds to 164 pounds in four months."
But Duane experienced a lifetime of symptoms. With each dinner and with each conversation that followed, one by one, family members realized they were all suffering from the same problems.
"All four of the children, two sisters out of three, and I think each of their children may have it," said Duane.
"Problems with constipation grew into severe stomach pains to doubling over with cramps," said Dean Dederich.
"It's a disease of inflammation of the small intestine and then small intestine can no longer absorb nutrients properly. That's the reason for diarrhea, bloating, iron malabsorption, and calcium malabsorption," said Dr. Mark Reichelderfer, UW Hospital and Clinics gastroenterologist.
Celiac disease is common and affects on average one out of every 250 people. It's a genetic condition found mainly in people of European descent.
But because the symptoms often mimic other conditions people seldom feel comfortable sharing, most Celiac sufferers never understand it doesn't take much to feel better. The solution is to go gluten-free. It's not an easy switch.
"Wheat, barley and rye is in just about everything. In addition, gluten itself is a food additive and added into lot of prepared foods as thickening agent," said Dr. Reichelderfer.
"Distilled vinegar, can't have. So, if you think of all the things with it, pickles, salsa, all of that, you have to be very careful about what you get," said Liz.
But the Dederich's have invited us all to their table to share what they know. Gluten-free food is still good food. For them, it's worth it to feel healthy again.
If Celiac is left untreated, it can cause other chronic or even life-threatening disorders. That's why the Dederichs are raising their children gluten-free. Even their dog, they've found out, is allergic to wheat.
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