JESSICA ARP: a group of grant county moms says a state
law is preventing important research from being done
in wi, we'll have more on their fundraising efforts
to make it happen:20
-- MICHELLE --
THE FIGHT FOR A FORM OF MARIJUANA OIL TO TREAT CHILD
SIEZURES CONTINUES IN WISCONSIN.
GOOD EVENING, I'M MICHELLE LI.
PARENTS SAY THEY STILL CAN'T FIND DOCTORS WHO ARE
WILLING OR ABLE TO PRESCRIBE THE DRUG.
NEW AT TEN, JESSICA ARP INTRODUCES US TO SOME GRANT
COUNTY MOMS ON A MISSION.
the community of lancaster has been touched greatly
by epilepsy, and a group of moms here now want to
use their city's generosity to bring cbd oil to those
who need it :16
NATS OF BOYS PLAYING FOOTBALL
ON THIS PLAYGROUND OF ACTIVE BOYS...
NAT OF EVAN
YOU'LL FIND ONE WHO DOESN'T PITCH AND CATCH QUITE
BUT IS STILL ALL SMILES.
NICOLE MCLEAN/MOMhe was diagnosed with infantile spasms
when he was 3 mo old and as he grew he grew out of
those and he was diagnosed with lennox gasteau epliepsy
9-YEAR-OLD EVAN MCLEAN'S MOM NICOLE SAYS HE'S BEEN
ON JUST ABOUT EVERY EPILEPSY MEDICATION...
BUT NOTHING CONTROLS IT.
ideally the only thing left we have is the cannabidiol,
the cbd oil, thats the only thing we have left :41
for him to live anywhere near a normal life :45
A GROUP OF OTHER MOMS.
HAVE BEEN FIGHTING TOO...
THE FIVE OTHER BOYS ON THIS PLAYGROUND...
AND ABOUT SIX MORE CHILDREN IN LANCASTER...
ALL HAVE FORMS OF EPILEPSY.
FOR FOUR YEARS.
THE MOMS HAVE HELD A RUN-WALK.
AND A CASINO NIGHT IN LANCASTER...
RAISING THOUSANDS OF DOLLARS FOR EPILEPSY RESEARCH.
AFTER A LAW PASSED LEGALIZING C-B-D OIL IF A DOCTOR
WOULD UNDERTAKE RESEARCH...
THEY RAISED 20 THOUSAND DOLLARS.
LEADING TO A 50 THOUSAND DOLLAR GRANT TOWARD A TRIAL...
TO GET C-B-D OIL TO FAMILIES RIGHT AWAY.
THE EPILEPSY FOUNDATION SAYS BECAUSE HOW WISCONSIN'S
LAW IS WORDED...
WILL LIKELY BE AWARDED ELSEWHERE.
it makes it more difficutl for researcerswho are intersted
because they ened waivers from the fda and the fda
has no history of granting those kind of waivers :11
so its complicated for medical professionals to participate
even if they want to :17
THAT'S DISAPPOINTING TO THE LANCASTER MOMS ON A MISSION...
WHO KNOW THEIR GRANT IS A HAIL MARY.
BUT THAT DOESNT MEAN THEY'LL STOP FIGHTING.
its not worth quitting :52 we're not quitters, we
dont quit, we're mothers, we fight for our children
every day :59
next year will be the moms 5th year of raising money
for epilepsy research, they say they hope by the time
its over they will have raised more than a quarter
of a million dollars for the epilepsy foundation and
that cbd oil will be available more widely by then.
in lancaster, jessica arp, wisc news three.